Throughout the past year, after that thing was removed from my head, I’ve had memories trickling back to me. Thankfully, my nice brain saved these great memories somewhere! I guess they were blocked by the 20 to 30 year old tumor for quite some time. Now, it is making me realize so much. The biggest “a-ha” is that as the tumor grew in its location, I had to focus only on people and things right in front of me to survive. Unfortunately, I somehow managed to cut myself off from a lot of people. I’m so sorry!! I get sad thinking about it. I did not mean to create any divides or come across that way to anyone. But I know all my true friends are willing to understand what is and was going on in my head. It will take time, but I am reaching out to people to re-connect. I get scared and nervous, but, more importantly, I am excited to reconnect with so many great people!
Today I went to Moffitt with Mike and my Mom, Betty, and saw my brain surgeon/neurologist, Dr. Etamé. We looked through the MRI information with Dr. Etamé. He always explains his research and findings quite specific in an open, understanding manner. So, generally speaking, the leftovers in my brain have diminished since our last visit and MRI three months ago.
Overall, it’s looking good in there!
Perfect laugh over having brain surgery! Thank you to the artist Constantine. We are both on the same Facebook group for people with the Oligodendroglioma tumor type, and he created and shared with us!
UPDATE 28 AUG 2017: Constantine has also decided to have tees made with another design of his. Any money he makes will be donated. Most likely he has chosen the American Brain Tumor Association. Will confirm! Here’s the first release and ready to ORDER:
One year ago on August 23rd, my head was sawed open. An awesome neurosurgeon, Dr. Arnold Etame, took out a huge percentage of a large tumor in my brain. The tumor, classified as a Grade 2 (low grade) oligodendroglioma, had apparently been inside me for 20 to 30 years!
To the right is our view early in the morning at the sunrise time. My husband drove my Mom and I to the hospital in Tampa for the whole day full of doctor visits and surgery prep on the day before the surgery.
On the surgery day, I remember being very nervous. Even that day before the surgery and on a prescription, I had my “anxiety” attacks. That I had found out from the doctor that these were seizures; I had a lot over the previous two years. I remember lots of random things on the surgery day. For instance, I remember arriving early in the morning with a few other people going for a surgery. I remember the nice strong support from my husband and mom, even though they were nervous, too. Once being driven in to the surgery room, I was prepped for an “awake” surgery. I felt like sort of an asleep state for a lot of the time, but I did talk a lot. I shouldn’t share some of the things I said! I also remember my neurosurgeon playing a certain song before he started his work, and it was so moving and had the positive energy flowing. Towards the end of the surgery, I really remember waking up – as they hammered the staples into my head and I called for more pain meds. I am sure the 10+ hours was even harder for my husband and mother waiting for me. Once out, I got to see them in my nice, only-me room. I know I fell asleep very quickly to start healing.
The next day, I had already decided to take pictures. Like this one, some of the pictures look scary, but to me it doesn’t look so bad, considering how long the surgery was and how much of the tumor my doctor got out – 90%! No other doctor thought they would get that much. You can see that the white cotton was where Dr. Etame entered through my skull to get to the brain. It’s like creating a door opening. He and his team then went through my brain using many curves and a lot of time, mainly being as precise as possible while cutting out a tumor.
The time at Moffitt for only a couple more days was excellent. Their team was amazingly nice, but also pushing me in a good way. For instance, this day after the surgery, they immediately asked me why I wasn’t getting up and sitting in the chair and still in bed while watching the Olympics or eating lunch.
There were a lot of scary things happening at that time. But I am so glad and thankful that it all did happen!! Sure, I have had some difficulties over the past year, but not as bad as it would have been if that huge, whole tumor was still there. So, thank you everyone who has helped me get through all of this – even if it’s a Facebook like, it means a lot!!
And since this is my first blog post in a VERY long time, I will do my diary research and put up some blog posts from over the past year. That way anyone who wants to know about the past year will be able to read about the good and challenging things.
On today last year, I started the day with my daily walk around my neighborhood pond during the sunrise view (see on the right). Next, shower and get ready for work. I would be a tad late, because we had the exciting new dish washer installed. Once complete, I then went to work. The Olympics would open that evening, and I was sooooo excited to watch while cleaning dishes in the new dish washer – lol!
That afternoon, I had another usual anxiety attack, but this time right in front of my manager, Jackie W. I was very embarrassed that this had happened at work. She knew immediately it was a seizure and (THANK YOU!) took me to the local emergency room for an examination. When I think back, my anxiousness had become stronger and more frequent. I just thought I should go find a therapist, and I would be OK. But at the ER, my husband, Mike A, and I found out after an MRI that I had a brain tumor.
While I was very scared, it made me know there was a reason for those seizures and we would get them out of me! I stayed in the hospital a few days (and watched the Olympics!). The doctors and nurses there treated me so well. There was even a great view of Clearwater Beach from there. While we initially thought I would get my tumor removed as soon as possible, we decided to go get some other opinions to ensure we had the right neurosurgeon for me.
Here I am today; even though still tired at times and healing still in the works, I appreciate every day!! Yes, the unicorn can show that dreams can come true!!
Sure chemo and radiation caused some changes, but biggest is that I’m finally a cool punk after so much time!
Came across this article about a blood test in development to see if you have a brain tumor starting way before it is even noticed. This could be amazing to find out earlier and hopefully get rid if it before it expands!
Here’s the link to Huffington Post ARTICLE.