Wow… I thought I didn’t write a lot in August… September was even worse! I guess I don’t need to make up reasoning. That being said, I am finally just about normal in the afternoon now. The mornings are still rough with something hurting and me still being sleepy. The biggest issue is the prescription that helps to keep me from having any seizures – I take the maximum allowed at 730am and again at 730pm. It is really supposed to keep you in a trace/slow feeling, so you are healing. But it is very strong.
Decided to (finally) let everyone know about my tumor and the surgery on Facebook. And 240 likes and 258 comments! Thank you everyone for responding and supporting me!!
Here’s my post:
“Update – I had a big brain tumor!! It was a glioma – called an oligodendroglioma. I didn’t think I had something like this – thought it was me just being nervous. Well, went to the emergency room after having an attack at work, and they let me know I had a brain tumor. I then had an operation on my brain three weeks ago. A wonderful doctor gave me a big operation and took out a huge percentage of the tumor. I am healing now and starting to feel better. We will see the doctor soon and decide what the next decision will be. My husband, Mike, is a wonderful partner in soooo many ways and helping me sooo much!! My mom, Betty, is staying to assist here with us. I am sorry I didn’t tell everyone right away, but I appreciate all your thoughts! I am still sleepy sometimes and in a healing state, so I will get back with you!! I’ve received great cards, wonderful plants and flowers, and fun things. Thank you for your support!!”
Feeling drugged after the operation. But not bad overall! And so glad the Olympics are on TV to watch!
Here are some pictures of me in my room at the hospital:
(Yes, adding this afterward…) Day of my surgery. Here’s what the surgeons and hospital call it: Awake left temporal stereotactic craniotomy with tractography for resection of temporal insular glioma.
The operation ended up taking about 12 hours I’ve been told. I know it was hard for my husband and my mom to wait in a small room for all that time. I certainly remember arriving at Moffitt early in the morning – still dark! I was quickly hooked up to a lot of meds with needles. And it did relax me a lot! I was then sent into the operation room, not very far away. I remember some chatting between all the people operating throughout the surgery. I guess Dr. Etame asked me questions before continuing, but I don’t remember that. I remember hearing some music he played before commencing on the surgery. I also remember asking for pain meds a few times when the staples were being added to my skull. That did hurt a lot!
Next thing I know, I was sent to the “wake up” area, where a nurse stopped by frequently asking me questions. Once I was more fully awake, I was brought to my room. My husband and mother showed up not too long after that. They stayed for a half hour, and I was given some more drugs to sleep well that night.
Yesterday was a good day overall. Got stuff done out back, cleaning in bedroom… Had a great Thai dinner and watched the sunset at Crystal Beach. Until last night going to bed when I realized it was Saturday and the operation is in a couple of days. I just got, well, scared. That is what is really scary to me. I admit it. I had some trouble getting to sleep. I just can’t let this fear take over these two days before the actual operation. Fuck, yes, it’s scary. Fuck yes, it’s scary!! But I don’t want to hide in myself and just be scared. I’ve been strong and I can continue. I will do my silly tasks around the house, like laying mulch and trimming the bushes out front and dividing the coleus. What I am realizing is that all these silly tasks really do mean a lot. The silly tasks Mike and my Mom and I have done over the past couple of weeks has made our house feel like a home again. We are moving clutter items into a staging area or just donating. It feels more open, more positive. A place to heal. And I realize that I have been treating myself and my husband improperly much more deeply than I thought by not “ignoring” my fear, but succumbing to it. Anxiety is dangerous. But that’s also why I see this as the negativity and anxiety I’ve held onto for so very long being literally taken out of my head. I don’t want it anymore. It holds me back way too much. Again, that’s why I am looking at this with THANKS. The crap is literally being pulled out of my head. YEEESSSSS!! And I think it will never come back. I’ve been chatting with Mike about this for a while and he probably thinks I’m crazy. But I think now that we have been literally clearing out our home, he sees it as well. Our bedroom felt so open and lovely yesterday afternoon – no dust, no darkness – just taking down the blinds was amazing. I want to use this openness and positivity to help others. I’ve had these thoughts for a while as well, just wasn’t sure how/where to focus them. Still not 100% sure, but a website will be a start. Mike is encouraging me to write a bio – it is amazing how many people have brain tumors and not much is discussed. Maybe that’s a good thing? Survival rates? At any rate, despite my immense fear, I am focusing on focusing on the positive. It’s the little things that add up each day. No, I haven’t learned how to let go of everything, but I’ve learned to let go of a lot more. And when one opens up, one can allow the light to come in. I want to help other people to see that as well.
The outpouring of love from so many people around – friends, family, friends of friends. It’s truly awesome. We really don’t understand the power we have. And all the negativity from the superfast internet revolution has actually pushed the power down. I feel it now. It was there all along and I was ignoring it. It makes me mad at myself and sad for myself. But then glad for myself. So glad I see it now. I don’t know what is going to happen with all this. But I believe I will heal pretty fucking close to 100% and I want to use this to produce more good in the world. I’ve got to stop closing myself off from so much goodness and so many good people. No, people aren’t perfect, but everyone tries!